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Chuvash erythrocytosis

MedGen UID:
1664139
Concept ID:
C4749274
Disease or Syndrome
Synonyms: Chuvash polycythemia; Von Hippel Lindau dependent polycythemia
SNOMED CT: Chuvash polycythemia (770407006); Chuvash erythrocytosis (770407006); Von Hippel Lindau dependent polycythemia (770407006)

Definition

A rare genetic congenital secondary polycythemia disorder characterized by increased hemoglobin, hematocrit and erythropoietin serum levels and normal oxygen affinity, which usually manifests with headache, dizziness, dyspnea and/or plethora. Patients present an increased risk of hemorrhage, thrombosis and early death. There is evidence this disease is caused by homozygous or compound heterozygous mutation in the VHL gene on chromosome 3p25. [from SNOMEDCT_US]

Professional guidelines

PubMed

Gordeuk VR
Clin Adv Hematol Oncol 2011 Dec;9(12):929-30. PMID: 22252661

Recent clinical studies

Etiology

Shah BN, Zhang X, Sergueeva AI, Miasnikova GY, Ganz T, Prchal JT, Gordeuk VR
Am J Hematol 2023 Oct;98(10):1532-1539. Epub 2023 Jul 12 doi: 10.1002/ajh.27021. PMID: 37435906Free PMC Article
Gordeuk VR, Key NS, Prchal JT
Haematologica 2019 Apr;104(4):653-658. Epub 2019 Mar 14 doi: 10.3324/haematol.2018.210732. PMID: 30872370Free PMC Article

Diagnosis

Gordeuk VR, Key NS, Prchal JT
Haematologica 2019 Apr;104(4):653-658. Epub 2019 Mar 14 doi: 10.3324/haematol.2018.210732. PMID: 30872370Free PMC Article

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